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cystic fybrosis 25 Jan 2012 07:24 #10899

nickmatt
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i just wanted to pick peoples brains on here if they have come across it
my girlfriends daughter has it, she's 2 and a half and one of the nicest kids you would ever meet. i have pretty much taken her on as my own
it's unbelievable what she as to go through daily ! medicines (a plenty) physio, hospital trips lasting 2 weeks when she gets something as simple as a cold or a cough , also having the prospect ofsuch a short life. all this impacts massively on life, and working life. she seems to take it all in her stride

i was just wondering if there were anything out there to help ? (alternative wise) i have mentioned mms to her to keep the bugs away, but she is wary doing it with someone so young, which i can understand
any help or advice would be gratefully received
thanks

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Re: cystic fybrosis 25 Jan 2012 13:03 #10911

pam
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Nick, the dosing for a child, orally, is much smaller than for an adult, but I can understand the mom's concern - just because it's not something she can research easily and she's had such a battle trying to keep the child well.

Other options she might try that would be less problematic would be MMS baths and MMS foot baths. I hope others will be able to chime in.

The following user(s) said Thank You: paul

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Re: cystic fybrosis 26 Jan 2012 20:12 #10987

nickmatt Topic Author Offline New Member Posts: 4 Thank you received: 1	thanks pam, that maybe a good idea i just want to try and keep the bugs away from her lungs as it causes irreversable damage
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