I’m desperate for any answers please!
My 13 year old daughter, Joscelyn, has the ‘holy grail’ of all cancers…DIPG. A very aggressive brain cancer.
I nearly lost her just after Christmas this year but she has turned a corner and is regressing (slowly) much to the confusion of her oncologist and palliative care team.
My question is around her subcutaneous line (butterfly) in her arm. She is currently having MMS1 in her nasogastric tube but she is very nauseous and vomits too frequently as soon as it hits her stomach, almost immediately. It doesn’t seem to matter if it’s 1 drop, or 4, she can’t be moved at all once her MMS starts for the day because she will be sick. I’m trying to keep it in her system for the whole 8 hours. Can MMS be somehow administered into her subcutaneous butterfly? It would be amazing if I could inject it without her being sick because it’s going straight to the blood stream.
I’d love some expert advice on this 🙏🏻 I need to save her, and because she’s not able to keep it in her system, she seems to in the last few days, be going backwards again.